More Tips for Living with Fibromyalgia

“Honestly, I’ve been struggling for the last couple of months.” My Hubby and I were talking about how exhausted and achy I was. This time of year I love getting outside, and we hit the beautiful trails around here every chance we get, but we’ve only been out on them a couple of times, because I just haven’t felt up to it. That’s life with fibromyalgia, though. Sometimes your body just doesn’t cooperate.

On Wednesday, we talked about overcoming wellness roadblocks, and Fibro is certainly one of mine – at least my physical dimension of wellness.

I only mention this because as we talked about last week, May Is Fibromyalgia Awareness Month, and I’m going to be sharing some tips from some of my blogger friends who also live with Fibro each Friday this week.

Barbara, Back Pain Blog

Background of purple butterflies with quote: "Never be afraid to ask for help, be it with the shopping, cooking, or cleaning. As most sufferers tend to 'look fine' most people do not realize the pain they are suffering inside, so if you don't ask you won't get help." `Barbara McLullich, Back Pain Blog
https://backpainbloguk.com/2022/04/30/10-tips-for-newly-diagnosed-fibromyalgia-sufferers/?fbclid=IwAR00qlCee0R4XksDReEPLvHJdwde5WjdOA6Fw9jrgRiq-f90mG3RjWSp8H4

This is so true! One thing I’ve had to learn is that it’s okay to ask for help. I’ve always been almost militantly independent, but if I hadn’t had my husband to help me out, especially those first few years after my diagnosis, I don’t know what I would have done.

Glenys, Australian Sacrificial Homekeeper

Background of purple butterflies with quote: "I have learned to say to people that I would love to come/do something but because of my fibromyalgia, I won't really know until the day how I will feel. So I will say a tentative yes and hope to be there/see you." ~Glenys, Australian Sacrificial Home Keeper
https://sacrificialhomebody.blogspot.com/2022/05/you-just-have-to-flex-with-fibro.html?fbclid=IwAR0RtE3k28h_hYelkNpKJ0FvpkGLdes02y2zn3Y9q3JSDD2NoNpkBNG3Gek

Letting others know what you’re dealing with and how you have to operate can be extremely helpful when you live with chronic illnesses/pain conditions.

Melinda, Looking for the Light

Background of purple butterflies with quote: "I would tell anyone who is diagnosed today to ask what would the doctor do next? What should they do next and what doctor should they see next. I would also ask for any words of wisdom from their experience." ~Melinda Sandor, Looking For The Light
https://lookingforthelight.blog/2022/05/05/my-tips-for-someone-newly-diagnosed-with-fibromyalgia-fibroawarenessmonth/?fbclid=IwAR0WNAbrK-wnlHLW4SB_MqslQhQv936QKJjodfHJFby46ZGUCUk9kDQ79PQ

So many times, we get a diagnosis of fibromyalgia, and think that’s the end of the road. But as Melinda points out, we need to see our doctors as part of our team and ask questions. It’s important that we’re involved in our care, and that we take advantage of the wisdom our doctors have gained from their experience.

Lynne, The Healing Within

Background of purple butterflies with quote: "Do not try to fight fibromyalgia you are fighting your own body! We see ‘fight fibro’ everywhere but what are you fighting? You are fighting your own body and you aren’t going to win! By trying to push through, and fight you are just going to suffer more. It may sound strange, but becoming a ‘fibro listener’, will you help you to help yourself by understanding what your body and mind need to heal. ~Lynne Said, The Healing Within
https://thehealingwithin.co.uk/what-you-need-to-know-after-a-fibromyalgia-diagnosis/?fbclid=IwAR2IDGsONCYVDiymA-EKE_cXWOSxDGN–ecZ4vsBk0iJPHSIbZ9ptiuz_Aw

I love Lynne’s idea of becoming a ‘Fibro listener’ instead of fighting our bodies! For me, that meant choosing to concentrate on my overall wellness instead of focusing so much on my fibromyalgia. For others, it may mean paying more attention to their symptoms in order to figure out what they need.

Caz, Invisibly Me

Background of Purple Butterflies with Quote: "Distractions can be excellent for improving our attitude and overall mood, which has a knock-on effect to how we handle chronic illness and pain. Distractions aren’t going to rid you of pain by any means, but they can form part of a multi-disciplinary approach to making your day to day a little brighter." ~Caz, Invisibly Me
https://invisiblyme.com/10-chronic-pain-distractions/?fbclid=IwAR28p8IN-QjZm5dSvkjyOUnFXhCkfEktRMr864QWakpCdfBx6lK4AEYUuDw

Yes! It’s so important to have something to distract you when you live with pain every day. As Caz says, they can improve our mood and maybe provide a little ‘attitude adjustment’ if we need one. 😁

For More Tips

I only shared one tip from each person, but underneath each tip is a link to a blog post they’ve written with more tips to help anyone who lives with fibromyalgia or other chronic pain condition. I know they’d love for you to stop by and say hi!

Fibromyalgia is a syndrome that can affect every area of your life, and unfortunately, right now there is no cure. That’s why this month is so important – making people more aware can also improve our chances of more funding for research and prayerfully, a cure.

Do you have any tips you’d like to share? We’d love to hear them!

Blessings,

~Terri

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Purple Butterflies with Text Overlay: More Tips for Living with Fibromyalgia

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6 Comments

  1. Thank you for helping increase awareness. Really liked how you highlighted others and their info

    1. Thanks so much for reading and commenting, Sarah! I think it’s important to lean on the wisdom of others who have been doing this for a while. Blessings to you!

  2. Hi Terri,
    Have you changed your site? I noticed the name had changed.
    I haven’t been receiving your posts & thought you were having a long break 🤔
    And had to follow this one anew.

    But i’m delighted to have found you again sweet friend!
    Thank you for bringing awareness to our challenging condition.
    I haven’t been organised enough this year to have posts on FM awareness Per se but as you know do incorporate the challenges we have in my posts.
    Blessings,
    Jennifer

    1. Jennifer, I’m so sorry – your comments ended up in my spam folder for some reason, and I’m just seeing this one and the one on my post from 5/22. Thanks so much for coming by and for following! It’s so wonderful to reconnect with you! And where Fibro’s concerned, you do a great job of raising awareness throughout the year. Thanks again for following the new blog! Blessings to you!

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